|MB adding to the PeaceLove at the walk in 2010.|
NAMI is the National Alliance on Mental Illness. It is an organization that started in the grassroots; family members of people with major mental illnesses banded together to try to demand something a little better for their loved ones. And now, NAMI is in every state and has parallel organizations in many other countries. NAMI offers support and education for people with mental illnesses, their family members, and those who provide them with care. They also do a ton of lobbying and advocacy work.
My parents got involved in NAMI in my hometown in Texas not long after my brother Paul was diagnosed with schizophrenia in 1994 (his diagnosis was later changed to schizoaffective disorder, bipolar type). When my mom died in 1999, and later when my dad died in 2002, NAMI folks showed up in full force at the house with food, at the funerals. The names and faces hardly registered, but I knew that NAMI people were good people. In the months that followed, I would occasionally get an email from a NAMI person in Texas who would report to me that they had seen my brother somewhere in town, and he was fine. It meant a lot.
About 9 months after our dad died (and right after i sold the house), Paul completely disappeared. I was beside myself. I was living in North Carolina, and he had last been seen in San Antonio, Texas. After about 6 weeks, he surfaced in a hospital in San Antonio, Texas. I learned this when a social worker, who had (miracle #1) managed to track down my phone number, called me. I spent about 2 weeks on the phone with her trying to figure out what was next for Paul. It's funny to think that what turned out to be such a defining moment of my life happened on the phone with a person I had never met, and would never meet. Suddenly, I was agreeing to wire money to San Antonio so that Paul could be put on a bus to me.
I hung up the phone and googled "NAMI Durham NC." I called another person I had never met before, a volunteer named David. I explained my brother's illness and that, if all went as planned, Paul would be showing up in Durham in about 48 hours. How could I get him medical treatment? Housing? Other social support? He had a ton of ideas for me--names, numbers, He shared some of his own family story as well. He assured me that everything would be okay--or at least as okay as these things go when you are dealing with mental illness. He also encouraged me to call him again if I needed anything else. (Although I didn't call him again, and never met him, we since become Facebook friends!)
Well, Paul's journey didn't quite go as planned. The voices and/or the Greyhound personnel kicked him off the bus in Montgomery, Alabama. (I've never been sure what happened. I've also realized what an incredible lot it was asking of Paul to get discharged from the hospital and get right on that bus. It's a miracle (#2) he made it as far as he did!) Miracle #3 was that I happened to have a friend who was planning to drive from Birmingham, Alabama, to Durham the day before this all happened. He was delayed by a day, and was happy (he actually insisted!) to swing by Montgomery on his way to Durham (probably 3 hours out of his way). Miracles #4-6 were that Paul was able to spend the night at a truck stop, he called me with an address, and he was actually still there when my friend showed up the next morning. (Wow, that sounded far too easy: he also called me every 10-15 minutes all night long. Literally. But I told him to. I told him that if the voices told him to leave that spot, he should call me, and I'd tell him not to. Every few minutes. All night long. Worst night of my life. And miraculous, guaranteed.) And Paul made it to Durham, a mere 20 hours later than planned. And, thanks to David and NAMI, he saw a doctor within 48 hours and had housing first thing Monday morning.
Now, having been much more involved in NAMI, I could tell you a ton of stories of the ways NAMI, or one of their support groups or classes or volunteers, has thrown a lifeline to a person or a family struggling with mental illness. For those of us who have mental illness in our families, it is such an isolating thing. You want to keep it quiet, for the sake of your loved one. But it is so healing when you realize that your family is not alone in this struggle.
So, what do you say? Can you walk with our team, Paul's Pals, at Roger Williams Park, at 10am on Saturday, October 1st? Click here to join our team. Can you sponsor one of our walkers? Click here to sponsor my brother Paul. (If you want to sponsor me, click here, but know that I'll be completing my 5K in Rome this year.)
The most important thing is that you file away that name: NAMI. When your co-worker tells you her son has been having some issues, when your cousin mentions some trouble her sister is having, when your neighbor is clearly dealing with some depression. Send them to NAMI. It can really help.